Kejriwal visits family of boy suffering from rare genetic disease
Sep 12, 2023
New Delhi [India], September 12 : Delhi Chief Minister Arvind Kejriwal on Tuesday met 18-month-old toddler Kanav, who is suffering from a rare genetic disease, at his house in Najafgarh.
The boy's family members said they have been able to raise Rs 10.5 crores for his treatment.
CM Kejriwal said in the country there are only nine such cases of the genetic disorder that the boy is suffering from.
He said there has been a slight improvement in the boy's condition after treatment.
"Kanav was born with a genetic disorder, of which there are only 9 known cases in the country. After tests, it was found that an injection from the US, worth Rs 17.5 crores, can cure this disease. Kanav's parents contacted AAP MP Sanjiv Arora, who started a crowdfunding drive to raise the required funds. Rs 10.5 crores were raised through the crowdfunding effort and the drug was brought from the US. After treatment, Kanav's situation has shown some improvement," Kejriwal told reporters after visiting the boy's home.
The CM thanked those who donated money for the boy's treatment.
"I want to thank all those who donated money, including some celebrities and MPs. I also want to thank the US-based drug manufacturer for agreeing to sell the medicine for Rs 10.5 crores," Kejriwal said.
