Australia: Indian-origin girl with ultra-rare fatal disease waiting for treatment

Apr 08, 2021

Melbourne [Australia], April 8 : Twelve-year-ago, life was going well for Indian-origin Neeraj Sawhney and his wife Vandana in Australia, they were blessed with...

12 lakh+ donors contributed over INR 125 Cr for rare disease patients on ImpactGuru: Report

Feb 28, 2022

Mumbai (Maharashtra) [India], February 28 (ANI/NewsVoir): ImpactGuru.com, India's leading integrated healthcare financing platform, reports one-of-its-kind, rare disease online donation crowdfunding movement with 12,00,000+ donors...

Better regulatory mechanism and patient registry; a must for rare disease management; experts at the IHW Council Rare Disease Summit

Jul 01, 2023

New Delhi [India], July 1: The experts at the Rare Disease Summit emphasised the need for patient registry for accessible treatment opportunities for rare...

PPHF, Niti Aayog Co-host Global Rare Disease Conference on International Rare Disease Day

Mar 05, 2021

New Delhi [India], March 5 (ANI/NewsVoir): To call for effective dialogue and decisive action against the alarming challenges of rare diseases in India, People...

Doctor fights rare disease in northwest China

May 05, 2022

Lanzhou [China], May 5 (ANI/Xinhua): At nine o'clock in the morning, Cao Yunshan walks into the ward he works in that cares for patients...

Do rare Diseases account for the economic burden on India?

Mar 18, 2023

New Delhi [India], March 18 (ANI/GPRC): The meaning of the term "Rare" is "not occur very often", but rare diseases are cumulatively not so...