PPHF, Niti Aayog Co-host Global Rare Disease Conference on International Rare Disease Day

Mar 05, 2021

New Delhi [India], March 5 (ANI/NewsVoir): To call for effective dialogue and decisive action against the alarming challenges of rare diseases in India, People...

Delhi HC gives nod for NCRD, orders to finalise National Health Policy for Rare Diseases before March 31

Mar 23, 2021

New Delhi [India], March 23 : The Delhi High Court on Tuesday passed several directions for treatment of people suffering from rare diseases including...

Union Health Minister approves National Policy for Rare Diseases

Apr 03, 2021

New Delhi [India], April 4 : Union Health and Family Welfare Minister Harsh Vardhan approved the "National Policy for Rare Diseases 2021", which aims...

Alkem Laboratories Raises Awareness of Rare Lung Diseases on World Rare Disease Day 2024

Mar 01, 2024

New Delhi/ Mumbai (Maharashtra) [India], March 1: As the world prepares to observe World Rare Disease Day on February 29, 2024, the focus is...

'Kerala United Against Rare Diseases' project will be crucial in rare disease treatment: CM Vijayan

Feb 16, 2024

'Kerala United Against Rare Diseases' or CARE project will be a crucial step for the state in the field of rare disease treatment, said...

Govt crowdfunding portal for rare diseases gets 31 patients registration in a week

Aug 18, 2021

New Delhi [India], August 18 : The government of India has started a unique initiative i.e a crowdfunding programme for the treatment of rare...