Govt crowdfunding portal for rare diseases gets 31 patients registration in a week

Aug 18, 2021

New Delhi [India], August 18 : The government of India has started a unique initiative i.e a crowdfunding programme for the treatment of rare...

Delhi HC directs to hold meeting on issue of funding of clinical trial for rare diseases

Mar 06, 2023

The High court also sought a status report from AIIMS on the treatment of children suffering from rare diseases.

'Kerala United Against Rare Diseases' project will be crucial in rare disease treatment: CM Vijayan

Feb 16, 2024

'Kerala United Against Rare Diseases' or CARE project will be a crucial step for the state in the field of rare disease treatment, said...

Govt exempts import duty on drugs used for treatment of rare diseases

Mar 30, 2023

The central has fully exempted basic customs duty on the import of all drugs and food for special medical purposes and for personal use...

Union Health Minister approves National Policy for Rare Diseases

Apr 03, 2021

New Delhi [India], April 4 : Union Health and Family Welfare Minister Harsh Vardhan approved the "National Policy for Rare Diseases 2021", which aims...

Delhi HC gives nod for NCRD, orders to finalise National Health Policy for Rare Diseases before March 31

Mar 23, 2021

New Delhi [India], March 23 : The Delhi High Court on Tuesday passed several directions for treatment of people suffering from rare diseases including...